Understanding Epidermolysis Bullosa

Epidermolysis Bullosa (EB) is a genetic condition causing fragile skin that blisters easily. Known as 'butterfly children,' those affected face challenges like walking difficulties, fused fingers, and eating issues. EB impacts families significantly, requiring extensive care routines. While there is no cure, research led by DEBRA aims to correct genetic faults and improve treatment. Donations are crucial to advance these efforts.

What is the primary cause of Epidermolysis Bullosa?

• Genetic faults in proteins

• Environmental factors

• Bacterial infection

• Viral infection

Why are children with EB often called 'butterfly children'?

• They have a short lifespan

• They have colorful skin patterns

• Their skin is as fragile as butterfly wings

• They are light and delicate

What daily activity becomes difficult for individuals with EB due to skin damage?

• Walking

• Sleeping

• Reading

• Listening

What is a significant risk for people with severe cases of EB?

• Diabetes

• Skin cancer

• Asthma

• Heart disease

How often do bandage changes typically occur for children with EB?

• Once a month

• Once a week

• Every second day

• Every day

What is the role of the charity DEBRA in the context of EB?

• Conducting medical research for a cure

• Providing financial aid to families

• Offering educational scholarships

• Organizing recreational activities

What is one of the scientific approaches being explored to treat EB?

• Gene correction

• Radiation therapy

• Chemotherapy

• Using antibiotics