Understanding Moine's Journey with Epidermolysis Bullosa

The video follows Moine Younis, an 18-year-old with Epidermolysis Bullosa, a rare skin disorder. Despite a grim prognosis, Moine has defied expectations, living a life filled with challenges and achievements. His daily routine involves extensive skincare, supported by his mother, Shafia. Moine's story highlights the emotional and physical toll on his family, their hopes for his future, and the healthcare challenges they face. Moine's work with a local charity earned him a Pride of Britain award, and he continues to inspire others while hoping for advancements in treatment.

What rare skin disorder does Moine suffer from?

• Vitiligo

• Eczema

• Psoriasis

• Epidermolysis Bullosa

How long does Moine spend in the bath each day to remove bandages?

• 30 minutes

• 1 hour

• 1.5 hours

• 2 hours

What award did Moine win for his work with a local charity?

• Pride of Britain

• Nobel Peace Prize

• Young Achiever Award

• Community Hero Award

What is the main focus of Moine's treatment?

• Improving mobility

• Relieving pain and preventing infection

• Curing the condition

• Enhancing skin elasticity

How does Moine's mother feel about her role in his care?

• She feels like a friend

• She feels like a nurse

• She feels like a carer

• She feels like a teacher

What is a major concern for Moine's mother regarding his care?

• Balancing work and care

• Getting enough sleep

• Finding a cure

• Who will care for him if she becomes ill

What does Moine wish for people who take life for granted?

• To meet celebrities

• To swap lives with him

• To appreciate their health

• To donate to charity

What recent medical advancement gives hope to Moine?

• A dietary supplement

• A pioneering genetic skin modification treatment

• A new pain relief medication

• A new type of bandage

How does Moine feel about the potential new treatment?

• Very hopeful

• Skeptical

• Indifferent

• Excited

What does Moine aim to do despite his challenges?

• Travel the world

• Inspire others

• Become a doctor

• Write a book