NHS Drug Plea for Child with Blood Disorder

The video discusses India's diagnosis with a rare blood disorder, atypical hemolytic uremic syndrome (aHUS), and her treatment with the expensive drug eculizumab. The treatment, initially provided for free, faces funding challenges as the NHS will not continue to cover it. Despite recommendations to fund the drug nationally, the government has deferred the decision to NICE, delaying potential funding. India's family is concerned about her future and has started fundraising efforts while petitioning the government to reconsider its decision.

What are the implications of the NHS not continuing to fund the treatments after the deal runs out?

What action did India and her mother take in response to the treatment funding issue?