The Teenager With Butterfly Skin

The video discusses epidermolysis bullosa (EB), a skin condition causing fragile skin and painful blisters. It highlights the daily challenges faced by Sohana, who has recessive dystrophic EB, including extensive dressing routines and social interactions. Despite these challenges, Sohana maintains a positive outlook, supported by friends and family. The video also emphasizes the importance of fundraising and research to improve the lives of those with EB.

What are the implications of pricking blisters as part of the dressing process?

How do friends and family perceive Sohana's condition and how does it affect their interactions?

What efforts have been made to raise awareness and funds for EB research?