The Teenager With Butterfly Skin

The video discusses epidermolysis bullosa (EB), a skin condition causing fragile skin and painful blisters. It highlights the daily challenges faced by Sohana, who has recessive dystrophic EB, including extensive dressing routines and social interactions. Despite these challenges, Sohana maintains a positive outlook, supported by friends and family. The video also emphasizes the importance of fundraising and research to improve the lives of those with EB.

What new insight or understanding did you gain from this video?