Class 5: Family-Centered Care Activity

Class 5:
Family-Centered Care
Class Activity

By Mark Miller

Multiple Choice

"When my son Aidan, was diagnosed with Von Willebrands disease, a blood clotting disorder, I was empowered and embraced by an angel. That angel was Dr. Travis from CHOP’s Voorhees Specialty Care Center. Dr. Travis recognized my need to be educated regarding Aidan’s plan of care. Dr. Travis and her staff introduced my family to the National Hemophilia Foundation (NHF), an organization supporting families with bleeding disorders.

Through this partnership, I have become educated, empowered and connected to a new community of other families sharing our experience. The education we received was not just for my son’s health but for my own, as I too suffer from the same disease. Our lives are substantially different because of the dedication we received from Dr. Travis, her staff, and the NHF (our angels)!"

• Dignity & Respect

• Information Sharing

• Participation

• Collaboration

Multiple Choice

"Several months after my daughter's first stroke an IEP (educational plan) meeting was planned to adapt her school program because of changes in her physical and cognitive abilities.

Her speech therapist from Children's Hospital attended the meeting, and when told that speech therapy three times per week wouldn't fit into the school therapist's schedule she stated, 'But this is about what Candace needs!'

That was when I realized that it was not acceptable to just settle for what was offered to my daughter, but rather to advocate for what she needed to give her the quality of life that she deserved."

• Dignity & Respect

• Information Sharing

• Participation

• Collaboration

Multiple Choice

"During a procedure that required inserting an IV into our son's head, a nurse noticed how difficult it was for me to watch & be there. I felt that in order to be a 'good mother,' I needed to stay in the Procedure Room.

The nurse told me I could leave for a few minutes until the IV was in, & then I could return to hold & comfort my son. 

I could not have left without her encouragement, but it actually was the best thing for me & for my son. I thank her to this day for recognizing my pain and my limitation."

• Dignity & Respect

• Information Sharing

• Participation

• Collaboration

Multiple Choice

A healthcare provider actively involves all family members during a patient's treatment plan meeting. The provider allows them to express their concerns and preferences of the potential treatment strategy. The provider responds in a courteous manner and frequently expresses that the patient and their family will maintain a sense of agency, regardless of their age or level of understanding with the condition and suggested treatment.

• Dignity & Respect

• Information Sharing

• Participation

• Collaboration

Word Cloud

Using one word, what is the most important concept/principle (either from the slides or the reading) that helps ensure you are providing effective Family-Centered Care within the Healthcare Setting?

Open Ended

Based on what we learned in class today and what you read in Current Applications of FCC in Pediatric Health,

What do you think are the most significant challenges in implementing FCC in pediatric health care settings today? Why might these challenges exist?