Journalism CAN Lead to Changes in Policy: CMS and Data Sharing

The video discusses the disappearance of substance use disorder data from Medicare and Medicaid files, a crucial resource for health services research. This issue arose from a 1976 regulation that restricted data sharing, unnoticed until 2013. The data scrubbing hindered research on addiction and related conditions. Efforts by researchers led to a proposed rule change by SAMHSA to allow data sharing with safeguards. However, the rule's future is uncertain due to potential political changes. The video concludes with a call for viewer support.

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