Genetics

Registry  is an organized system that uses experimental study methods to collect data 

• True

• False

The data from clinical trials may be more applicable to general population 

• True

• False

Visits in registries are per protocol

• True

• False

Research to find treatment for Gaucher since 1980

• True

• False

Patients may be enrolled to the registries irrespective of their treatment status and choice of treatment 

• True

• False

First patient enrolled to Gaucher registry in 1991 

• True

• False

First patient enrolled to Fabry registry in 2001 

• True

• False

First patient enrolled to Pompe registry in 2004

• True

• False

No exclusion criteria in registries

• True

• False

More than 19000 patients enrolled in all registries 

• True

• False